Endometriosis

Endometriosis, you cannot visibly see it, but if you have it, you know it is there. It is there waiting to flare up, to take away your freedom. I have heard that it is not a real issue, it is just a bad “period.” No, it is definitely more than that.

If you have it, you know what I mean. I was diagnosed at 19, and that “having a baby” would cure it. Definitely was not ready to have a baby at 19. Over the years, it had spread and it was life-altering. The pain was almost every day and sometimes, I could not even walk. Yet, it is not a visible injury, so it is hard for people to sympathize or understand. Eventually, I had to obtain FMLA (Family Medical Leave Act), as it protected my job if I was unable to go to work. I litteraly would be running and have a flare-up and bite my arm to keep from screaming as I made it back to my car.  Later, it got so bad that I could not even run anymore.

At 36, it had progressed to cover by bowel and colon and had a total hysterectomy with a bilateral salpingo-oophorectomy. Medication did not help anymore, chemical menopause did not help. All types of birth control did not help. Unable to have children, this was the best course for me.

I would like to hear back if you have been diagnosed with Endometriosis, and where you are at in your story.

2 Comments

  1. Congratulations on your successful FMLA claim!! I know a lot of gals who haven’t been able to succeed in that route. ❤ I have Endo and each day is its own journey. I feel like I'll never be able to fully live as I used to (before I knew about my diagnosis and would push past the pain..making it worse…). Now I honor my body when its in pain and have severely limited my extracurricular activities. But blogging about Endo, raising awareness, connecting with other Sisters, and learning to honor my body has helped me cope so much. ❤ Diagnosed 2014 (35 years old) with excision surgery, Lupron Depot (6 months), birth control (18 months), 2016 2nd excision surgery. Off all medications now (except the occasional Ibuprofen,l Naproxen Sodium, or Tramadol) and trying to manage my symptoms with diet, light exercise, and honor.

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    1. Hello there! Yes ma’am I had the FMLA a year before my TAH/BSO. I don’t think people get the pain of this debilitating disease. Mine spread to many organs and my ureters . I feel much better now that everything is gone. I am so deeply sorry about your pain, and will keep you in my thoughts . I am so honored to correspond with you !

      Like

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